Local Support Groups
London based in University College London Hospital (UCLH)
Cyril Cleary - Chair
A very warm welcome to the home page of the London Patients Group , based at UCLH Hospital. Our group was formed in December 2012 , and we now have regular events based at the hospital, designed to inform and support new and existing Barrett`s patients on all aspects of the condition, as well as a keen interest in research, future developments, and lobbying for sufficient resources to meet an ever growing need.
We see our primary purpose as providing pastoral care to patients and carers in the London area, to compliment the exemplary care provided by the medical team at UCLH and the wider HCUK charity network.
Our regular contact currently takes the following forms;
Firstly, all new patients are routinely informed of the existence of our group in the hospital, and are encouraged to contact me by phone, at any time, to learn about the group , and discuss any questions they may have, fellow patient to patient.
Secondly, we attend regular clinics at UCLH on the 1st and 4th Wednesdays of the month, offering the facility to patients and carers attending the hospital to come and have a cup of tea and a a chat with us, again seeking to offer an opportunity to listen to any concerns, and share our practical experience of Barrett`s, which collectively is now a huge bank of practical knowledge.
Finally, we hold open patient`s meetings at the MacmIllan Centre, UCLH, on a quarterly basis, on the 1st Wednesday of the month, from 5 - 7pm, which we have found to be very helpful, friendly and supportive.
We regularly invite guest speakers to these meetings to discuss specific aspects of Barrett`s, including our key Consultants, dieticians, and specialist nursing staff.
Though still a relatively new group, our numbers are growing steadily, and I know we all feel this is proving to be an invaluable new service from which we all learn and receive huge benefits, which ultimately contribute to greater knowledge, and ultimately to better outcomes for ourselves and our families, which is so important for us all.
If you would like to know more, or, even better, come and join us, please feel free to contact me at any time
01279 731 352
07935 391 828
Our latest patient support group meeting took place on Monday 12th October 2015, at the
Macmillan Centre, University College London Hospital, Huntley Street, London WC1E 6AG.
We were treated to a very stimulating presentation by Professor Laurence Lovat,
Professor of Gastroenterology and Biophotonics, on
"The Development of Barrett`s treatment, and patient self-help".
We hold regular patient meetings every 2 months at this venue, from 5.00 - 6.30pm, on the first Wednesday of the month.
Our next meeting is scheduled for Wed 6th January 2016, at 5pm.
New members are always particularly welcome, and we hope you`ll find the group is a great way to understand more about Barrett`s, share practical advice from our collective experience as patients, and keep up to date on the fast changing developments in research and treatments
A very successful HCUK London event was held on the 22nd November in the atrium at UCLH.
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