HCUK Support & Support Groups
One of our aims is to ensure consistent support is available to everyone affected by Barrett’s Oesophagus, regardless of who they are and where they live. Information and advice is available to all those affected by the disease and to the people who support them on our website or by telephone.
We need your help to bring this to the attention of your employees, friends & family or indeed anyone who might suffer from Persistent Heartburn!
You can make a difference. Perhaps you know someone who has suffered from Persisitent Heartburn, Barrett’s Oesophagus or Oesophageal Cancer. Perhaps you run an organisation and would like to help, why not make it your company’s corporate responsibility?
Currently we have three very active Support Networks in:-
BASINGSTOKE SUPPORT GROUP
BARRETT’S STOMACH & OESOPHAGEAL CANCER SUPPORT (BSOCS)
Click above to see details of our Latest meeting
Contact Miriam Jones, Macmillan Upper GI Cancer Nurse Specialist Tel 01256 315090 or
Jess Harris - firstname.lastname@example.org or Tel 01256 338647
East Anglia - based in Cambridge
Alastair Reid - Chairman
London - based in University College London Hospital (UCLH)
Jane Bellamy - Chair
HCUK Code of Practice for Support Groups
HCUK is committed to creating Awareness about the dangers of Persistent Heartburn.
HCUK is committed to helping people diagnosed with Barrett’s Oesophagus and/or Oesophageal Adenocarcinoma Cancer.
To enable this to happen HCUK encourages the creation of Support Groups within a clinical setting with the assistance of a specialist nurse, where possible.
HCUK will provide ‘’seed’’ funding to help establish such Groups and will help with initial administration and communication.
Once set up Groups will be encouraged to maintain contact with the specialist nurse and HCUK.
Should the Group wish/agree to identify with and support the aims and objectives of HCUK then further benefits would be made available as follows: -
a - Website Page’s, on HCUK website, will be made available for your Group.
b - Further funding when needed. (subject to justification)
c - HCUK Awareness leaflets & Booklets will be made available for events.
d - HCUK will provide Insurance for events.
e - Regular Communication.
f - Help providing professional Speakers for your group.
g - HCUK will attend your meetings whenever possible.
h - Updates on trends/developments - relevant to Barrett’s Oesophagus and Oesophageal Cancer will be sent as appropriate.
In return all we would ask is that the Group, in turn, recognise the relationship with HCUK on your communication documents, by supporting our aims, by use of our Logo, help us to achieve our aims, which could entail PR and Fundraising and possibly the use of our name, HCUK, in the name of your Group. i.e. HCUK Barrett’s London and HCUK East Anglia etc., For internal awareness copies of your group’s minutes/notes would be appreciated and we would ask that you keep in regular contact with HCUK’s Chairman and National Co-ordinator.
Through the Support Network we aim to provide support, raise awareness and fundraise.
Through our website fellow Barrett’s sufferers and like minded people can find information from previous sufferers which can be very helpful when you are concerned about your condition.
Fundraise in any way you wish. We have had marathon runners, beard growing initiatives, trekking to Everest Base Camp. Not only does this raise money but also raises awareness, which is just as important.
We have leaflets, posters and flyers for distribution in gastroenenterology departments, GP surgeries and pharmacies. Perhaps you could help distribute them?
Please support us in any way and make a difference to other people’s lives. Raise awareness so the rise in oesophageal cancer is stemmed.
Mimi McCord (Chair of Heartburn Cancer UK) is either a phone call or email away and she can help guide you in the right direction.
Tel: 01256 338 668
Setting up a regional network
If you do not have a Support Network near you, have you thought about starting one up? Your gastroenterology department would hopefully help by contacting others with a similar condition to you. We could also provide them, or you, with posters and flyers to help raise awareness.
Ideally you need the support of your gastroenterologist or specialist nurse. They have the database of Barrett's sufferers and they will have to send a letter on your behalf advising their patients of what you are doing and why. HCUK can provide the letter for your consultant/specialist nurse to send.
You should now have a group of people (a minimum of three but there is no maximum) who are as keen as you are to work along the following lines:
Raise public/medical and political awareness in your local area of heartburn and/or reflux and its link with Barrett's and oesophageal cancer.
Provide support to local sufferers and those connected with them.
Raise funds to make these aims possible and for local initiatives such as a piece of equipment for your gastroenterology department.
Raise funds to enable HCUK to achieve its objectives.
At this point you might like to consider forming a committee with a Chairman, Vice Chairman, Secretary and Hon. Treasurer. HCUK will provide you with the 'Terms of Reference for Regional Groups' which as a charity we have a legal responsibility to follow.
How you raise awareness and funds is entirely up to your members, as long as you follow the charity branding and that it is legal! We will offer you support, publicity information and anything else you might need, just ask.
Why Heartburn Cancer UK Exists
As a recognised and trusted authority in the field of Cancer of the Oesophagus, we know that with your help we can make significant inroads in the Prevention, Detection and Treatment of this disease by focussing on 5 key areas of action:
Education leads to a lasting change. We are working hard to influence public and social policy, to lobby politicians, to campaign for change, to promote greater collaboration amongst the medical profession, the public and the government. We are already in the process of developing a network of effective partnerships with businesses, the pharmaceutical industry, medical professionals and other like-minded groups. We intend to effect change and influence how this disease is perceived, detected, diagnosed and treated.
Our aim is to significantly reduce incurable oesophageal cancer in the UK.
Our renowned medical professionals, all experts in the field of oesophageal cancer, will continue to play a key role in research and trials designed to reduce the incidence of this appalling disease.
Early detection rates are vital to ensure a positive outcome. We are creating a communication network to facilitate greater awareness of the importance of diagnosing the disease early, identifying the symptoms associated with the disease and seeking medical help quickly. Oesophageal cancer affects everyone regardless of their race, gender or age.
We will ensure consistent support is available to everyone affected by Barrett’s Oesophagus, regardless of who they are and where they live. Information and advice is available to all those affected by the disease and to the people who support them, on our website or by telephone.
We need your help to bring this to the attention of your employees, friends & family or indeed anyone who might suffer from persistent heartburn!
You can make a difference. Perhaps you know someone who has suffered from persistent heartburn, Barrett’s Oesophagus or Oesophageal Cancer. Perhaps you run an organisation and would like to help. Why not make it your company’s corporate responsibility?
We are not content with standing still; we are determined to develop and grow a sustainable UK charity which continually re-invests to maximise the impact of its resources.
Working with UK businesses and voluntary organisations' our outward facing collaborative approach will ensure we are the first place to come to for reliable, up to date information about Heartburn, Barrett’s and Oesophageal Cancer.
HCUK - Information Centre
All you need to know about Heartburn, Barrett's Oesophagus, Oesopageal Cancer. If you need support we can offer advice. Please contact us on the "Ask our Doctor a Question" form, or you can join one of our Local Support Groups. You can also buy Heartburn Cancer UK Clothing and other HCUK Merchandise to help Raise Awarness and of course we would very much welcome a Donation to allow the charity to carry on offering free advise, Raising Awareness, Changing the Future and Saving Lives.