Follow Us:

Patient Stories

Do you have a story to share?

Reading other peoples stories, symptoms and experiences really helps highlight to others what you should be aware of and look out for. It can also help people find the courage to make a Doctor’s appointment and get checked out. It’s so important that we help anyone worrying about a possible symptom or a change in their body or health to take action. It really can make all the difference to be seen sooner rather than later. You might be worrying about nothing at all or, if there is a problem, it could be easier to resolve. Somehow knowing someone else has been through something similar to you, can really help people consider their situation and take action in a way that no other sort of information can.

If you have a story that you think might help others and you don’t mind sharing it with us, please get in touch.

Dean’s Story

Dean’s family share his experience of being diagnosed with oesophageal cancer at just 37 years, describing the symptoms he noticed, his diagnosis journey, and treatment. His story highlights the importance of early detection, awareness, and seeking medical advice when symptoms first appear.

John’s Story

John, diagnosed with early-stage oesophageal cancer, shares his experience of persistent heartburn and the importance of acting on symptoms early. His story highlights early diagnosis, NHS care, and the value of staying active during treatment.

Evan’s Story

After losing their beloved dad Evan to stage 4 oesophageal cancer in September 2024, Emily and her family are sharing his story to raise awareness. From long-term reflux medication to a devastating late diagnosis, they are urging others to speak up, push for answers and get checked early.

Ian’s Story

Ian, a 56-year-old runner and father of two, shares his journey with oesophageal cancer. From early symptoms and multiple treatments to surgery and recovery, his story highlights the importance of self-advocacy, persistence, and hope for the future.

Heulwen’s Story

Heulwen, a retired clinical nurse from South Wales, noticed indigestion and food sticking when eating. Assuming it was a hiatus hernia, she visited her GP, and tests revealed oesophageal cancer. Fit, active, and symptom-light, her diagnosis was a shock that changed everything.

Adam’s Story

Adam is a 56-year-old record producer and musician based in Kettering. Adam experienced heartburn/acid reflux over the years and in March 2023 he experienced swallowing difficulties and was diagnosed with Oesophageal Cancer. Adam’s story is a powerful reminder that early detection saves lives, and that strength, support, and positivity can make an enormous difference during and after cancer treatment.

Michael’s Story

Michael, a dedicated farmer, died from oesophageal cancer, aged just 46 years. His story highlights the importance of the knowing the dangers of persistent acid reflux and getting it checked early.

David’s Story

Oesophageal cancer begins quietly, with symptoms like heartburn or reflux, but for David, it started with a slice of ham. David urges people not to ignore warning signs: “Don’t ignore symptoms. Don’t just self-medicate with over-the-counter remedies. If something doesn’t feel right, see your GP and push for answers. If I hadn’t, I wouldn’t be here today.”

Gill’s Story

Gill, aged 62, was diagnosed with oesophageal cancer after she started finding it hard to swallow, and her niece noticed how much over-the-counter indigestion medicine she was relying on. Gill wants people need to know that taking over the counter medicines for long periods of time is not normal.

John’s Story

At 54 John was fit, active and had no major health concerns, just the occasional bout of heartburn. He had no idea a silent killer, oesophageal cancer, was taking hold. It wasn’t until one day when he felt unwell that he realised something was wrong. In his inspiring story John talks about the silent symptoms we all ignore.

Sam's oesophageal cancer story

Sam’s Story

Sam received an oesophageal cancer diagnosis at just 40 years old. He had a history of persistent heartburn, which he put down to stress and managed with over-the-counter medication. Sam courageously shares his story, hoping to raise awareness of the dangers of persistent heartburn and the importance of early detection.

Kim's oesophageal cancer story

Kim’s Story

Kim was living an active life when she was diagnosed with oesophageal cancer. Despite tough chemotherapy and major surgery, she stayed resilient, continuing to work and finding support from colleagues and friends and is now in a better place.

stuart griffiths oesophageal cancer story

Stuart’s Story

Stuart suffered from heartburn for as long as his daughter Esther could remember. He was diagnosed with oesophageal cancer after experiencing weight loss, back pain along and swallowing difficulties. Just under two years after his diagnosis Stuart passed away. His daughter Esther tells his story.

Joy Falconers oesophageal cancer story

Joy’s Story

From feeling well on holiday to a sudden and unexpected oesophageal cancer diagnosis, swift action saved Joy’s life. Now cancer-free, she cherishes every day. Read her journey of strength and gratitude.

penny's oesophageal cancer story

Penny’s Story

As a nurse Penny had spent a lifetime caring for others, including five years at Macmillan, and she understood the importance of health awareness. When it came to her own persistent heartburn she never imagined they could be something more serious.

David Halls oesophageal cancer story

David’s Story

At the age of 62 David received the news that no one ever expects, that he had oesophageal cancer. That day, his life changed forever. His diagnosis and treatment have been incredibly difficult, but he has learned so much from the experience.

Keiths oesophageal cancer story

Keith’s Story

Keith’s life changed unexpectedly with an oesophageal cancer diagnosis. Keith’s journey is a testament to resilience, adaptation, and the importance of seeking help when something feels wrong.

John's oesophageal cancer story

John’s Story

John’s busy life took a turn in when persistent reflux and swallowing issues led to a diagnosis of oesophageal and stomach cancer. John’s story is a powerful reminder to listen to your body and seek medical advice when something feels wrong.

Andrew's oesophageal cancer story

Andrew’s Story

At 67, professional singer Andrew began having trouble swallowing. After scans he was diagnosed with oesophageal cancer, linked to his Barrett’s oesophagus. Andrew’s journey is a testament to resilience, hope, and the power of doing what you love – no matter the obstacles.

Ade and Dave - hcuk oesophageal cancer story

Ade’s Story

When Ade died of oesophageal cancer at just 53, he had no idea that the lessons learnt from his death would have far-reaching consequences for other people, including those closest to him. His sister Jenny believes the tragedy of losing Ade has saved the life of her own partner.

Paul Norris Oesophageal Cancer Story

Paul’s Story

Paul is aged 52 years. He was diagnosed with Oesophageal cancer in July 2024, had oesophagostomy surgery and is now cancer-free, which all took place in a crazy five-week period. Read his inspiring story, including some heartfelt advice about how he coped through his Oesophageal cancer journey.

Image of Rob Horton

Rob’s Story

Rob was fit, he was active. He was a runner, a kayaker, a rock climber, a builder by trade. His wife Maria tells his story of how he dealt with everything oesophageal cancer had to throw at him for just over 4 years, always with a smile.

Mike’s Story

Mike, a fit and healthy 46 year old, was diagnosed with oesophageal cancer in December 2021. he underwent chemo in Jan 2022 to shrink the tumour, had an oesophagectomy in April and then further chemo. He says having a positive mindset was a huge contributor to his outcome.

John’s Story

In 2015 John had problems swallowing. An endoscopy, held in early in January 2016, showed that John had Oesophageal cancer. This is John’s oesophageal cancer story, written in his own words, and given at a talk a month before he sadly died in 2018.

Skip to content